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Is Anyone Out There? Worried Again!
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TOPIC: Is Anyone Out There? Worried Again!
#3197
BrendaB
To fly is fine, but to hover is devine!
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Gender: Female Location: Homestead, Florida Birthday: 09/20
Re:Is Anyone Out There? Worried Again! 2 Years, 1 Month ago Karma: 0
Howdy TXDave,

Pain "can" be a sign of the nerve(s) trying to heal, but with entrapment, it could be a sign that the nerve is still getting a "signal" through, but it is struggling. That determination would be best given by your doctor after a thorough exam. Are you with a doctor now? I hope you get good news. Take care, and Happy New Year!!!

Brenda
 
Mar 08 ACDF with Instrumentation C5/6
April 08 Subcutaneous Ulnar Transposition, Guyon's Release and claw fingers release
Aug 09 ACDF with Instrumentations C6/7
Oct 09 (new) Degenerative disk disease with Osteophytes C7/T1 Degenerative disk disease C2/3, disk bulge, Osteophytes
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#3198
txdave36
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Re:Is Anyone Out There? Worried Again! 2 Years, 1 Month ago Karma: 2
Hey Brenda,

Happy New Year to you!! We all need it for sure.

The last time I saw a doc was way back in Sept. It was an orthopedic specialist, and all he could tell me was that it sounded like cubital tunnel. I felt like I had completely wasted my money.

The good news is I'll finally have good health insurance starting Jan. 1. I suppose the next step for me is a nerve test and seeing a neurologist. But it is hard not to feel discouraged. My nurse friend told me there is just really not much that modern medicine can do for troubled nerves.

But staying positive and not being afraid of this condition is important. I was able to be completely at peace with it just a few weeks ago until the snuggle incident. I tell myself that an amputee would give anything to have functioning arms and hands even if there is intense pain so I should be grateful for what I do have.
 
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#3199
BrendaB
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Re:Is Anyone Out There? Worried Again! 2 Years, 1 Month ago Karma: 0
txdave36 wrote:
Hey Brenda,

Happy New Year to you!! We all need it for sure.

The last time I saw a doc was way back in Sept. It was an orthopedic specialist, and all he could tell me was that it sounded like cubital tunnel. I felt like I had completely wasted my money.


Dave, Happy New Years to you as well!!! Question; What kind of Orthopedic Specialist did you go to? Mine was a "Sports Orthopedic Specialist", and most of his patients were football and baseball pros locally. He never called mine "Cubital Tunnel" as it was a fairly new term when mine was done. He did directly say the Ulnar was getting entrapped in my elbow, and too more likely than not my hand (Guyon's). It turned out when he got in there, the nerve was in more danger in my hand. Daily helicopter flying was crushing it in my hand! Yep, you got it, no more flying - 30 years done.


The good news is I'll finally have good health insurance starting Jan. 1. I suppose the next step for me is a nerve test and seeing a neurologist. But it is hard not to feel discouraged. My nurse friend told me there is just really not much that modern medicine can do for troubled nerves.


So glad to hear that you are going to have good insurance in just 2 days! That is a great start to the new year. I have to disagree with your nurse friend. There is a lot they can do, but much of it is dependent on what "we" and our "bodies" do with the nerves before "modern medicine" touches/releases it/them. I'm on another site, and many highly qualified RN's are just as in the dark and filled with much of the same questions you and I have.

Remember it comes down to several things to heal (if it is possible): your attitude (your good there), finding the right surgeon, following ALL directions and PT as prescribed, positive attitude (oops, already covered that). After feeling success, NOT returning to the same actions or habits that caused the original problem! A lot of people go back to what hurt them, and zing it comes back.

The level of entrapment as to whether permanent damage has occurred (nerves suck when hurt). If the onset was slow, better chance that the damage isn't permanent, trauma to the nerve (sudden herniation, car accident, fall etc.) many times will and do cause permanent damage. I have experienced both variables with my neck/back/arm.


But staying positive and not being afraid of this condition is important. I was able to be completely at peace with it just a few weeks ago until the snuggle incident. I tell myself that an amputee would give anything to have functioning arms and hands even if there is intense pain so I should be grateful for what I do have.


This paragraph again shows you have the right attitude. I would seek another Ortho or like you mentioned, get with a Neurologist and get the nerve conduction studies done to see what is going on for sure. Piece of advice? When the needle portion of the test begins have the NEUROLOGIST do it! Many of the techs don't seem to hit the muscle right, or don't have you flex or extend correctly resulting in inaccurate or false reports. Once the test is done, ask the Neuro to recommend an Ortho that *he* knows is very informed and skilled with Cubital Tunnel and the related Ulnar nerve issues. Chat again soon Dave.

Brenda
 
Mar 08 ACDF with Instrumentation C5/6
April 08 Subcutaneous Ulnar Transposition, Guyon's Release and claw fingers release
Aug 09 ACDF with Instrumentations C6/7
Oct 09 (new) Degenerative disk disease with Osteophytes C7/T1 Degenerative disk disease C2/3, disk bulge, Osteophytes
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#3200
txdave36
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Re:Is Anyone Out There? Worried Again! 2 Years, 1 Month ago Karma: 2
Hey Brenda,

I appreciate the responses. It is very helpful hearing from someone that has been down this road.

I believe the doc I saw was a sports medicine guy. I felt ripped off because he didn't take my problem seriously and only talked to me 5 minutes. Offered zero advice and charged me almost $200 dollars!

I told a friend last night that the timing of this problem really stinks because I am looking at 4 possible causes when it all started:

1. My increased gym time and weight lifting especially tricep building.

2. Working on the computer all day

3. The neck adjustment at the chiro

4. Hitting the back of my head against a thick headboard.


I'm starting to wonder if the head injury is the culprit because symptoms are showing up more dominantly in my right arm now as well.

But the weird thing is I don't have neck pain anymore, and the pain level in my arm has grown very intense lately.

But the signs also point to cubital tunnel as I get the worse pain right in the elbow, and sparkling tingly pain up the forearm. I was alarmed on Tuesday when my entire hand went numb driving on the steering wheel. I read this can occur with cubital tunnel. I can no longer comfortably talk on the phone which really sucks.

How common do you think this problem is? I keep reading it is the 2nd most common nerve problem yet I never heard of it until this year. I always thought carpal tunnel would be the problem I end up with!

I had my mom do some of the hand tests and I was able to show some resistance. My pinching ability appears to be normal as well so I'm holding onto that as a sign that no permanent damage is happening.
 
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#3202
BrendaB
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Re:Is Anyone Out There? Worried Again! 2 Years, 1 Month ago Karma: 0
Howdy Dave, and Happy New Years!!!

That is rather surprising that he was a sports surgeon and did that to you. Sorry to hear that happened. Unfortunately (and I see that BAD in the Miami area) there area a lot of really good doctors, but they overload their schedules to the point that most don't get proper attention and at times care. Bad time management I guess. I would look for another doctor that isn't going to give you the 5 minute look over.

As for causes and such, sheesh (not a bad sheesh) it could actually just be a mix over the years! As for neck, let me give you what I went through for each area. Please keep in mine these are the symptoms *I* went through, but might be of help?

(Arm first) (Neck not involved)
I started with tingling and numbness in my pinkie (most noticed when I typed). My pinkie would "miss" the *P* for example when I typed. I then slowly started getting similar issues in my (half) ring finger. I only had a small ache feeling in my elbow (and maybe a 1/2 inch above it?) and a bit of "tired" feeling in my forearm on the side of the pinkie. After a while I started losing dexterety in my fingers and overall hand strength. Nothing really above the elbow - Ulnar related.

(Neck) - (NOW)
Pretty much the same as above, but lost the ring and pinkie pretty much over a couple of hours! I now have pain in the forearm, elbow and up to the armpit (Ulnar side). I have not lost a lot of the hand dexterity or strength yet at this point (it has been around 4 weeks). Depending on which way my head is turned, I get radiating pain on the back side of my shoulder as well. I am also numb on the Ulnar side from about 4 inches below the elbow to the armpit. To me, it feels totally different.

Neck, can occur slowly, but most times the pain and numbness extend above the elbow. In both instances I could tell "temperature" with my fingers, but could not if my eyes were closed, tell what kind of surface I(texture) was touching.

A thorough EMG/CVG can tell if the issues are elbow or neck related. MRI also helps to cancel out the neck. That you aren't showing a lot of weakness yet (to me) is a good sign. I lost a lot of my strength by the time he went into my elbow and hand. After about (hummm..) 6 months, I noticed the strength coming back. The nerves heal slowly, so it was a good year before I had most of my feeling back.

As for popularity? I think with more and more people on computers and the like, it probably is more common now a days. Percent wise? Your guess is as good as mine there. I think it was only in the last year they actually gave it a "real" name is all. Hope this helped. If I missed something, please ask, take care.

Brenda
 
Mar 08 ACDF with Instrumentation C5/6
April 08 Subcutaneous Ulnar Transposition, Guyon's Release and claw fingers release
Aug 09 ACDF with Instrumentations C6/7
Oct 09 (new) Degenerative disk disease with Osteophytes C7/T1 Degenerative disk disease C2/3, disk bulge, Osteophytes
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#3203
Yiayia
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Re:Is Anyone Out There? Worried Again! 2 Years, 1 Month ago Karma: 0
Hi Dave and Happy and Healthy New Year to you!

I don't know what caused my CuTS but it hit my left side a lot more severe than my right, and I'm right handed. The neurologist told me to wear braces "and you will figure out when you bend your elbows the most." It took half an hour with braces to figure out that holding the phone with my left hand while working was my #1 culprit. Since then (and even after my Oct. 09 surgery) I use a headset for land lines and a bluetooth for cell phone. If the headset isn't nearby, I use the speaker. I no longer bring my hands up to my ears.

So consider the phone holding a no-no.

What I've also found is that when I'm working at the computer and using the mouse (or even typing), I tend to dig my left elbow into the arm of the chair. I've installed some heavy duty foam on the arms and that's when I realized that I was doing that.

Strangely enough, the doctor said that typing is one of the best exercises I can do for pinkie and ring finger, so I've been a typing fool.

My hand has lost a lot of muscle mass which will probably not be restored. My grip is extremely weak but the doctor expects it to strengthen. I don't remember the technical terms of my surgery but my ulnar nerve was moved between muscles and the bone was "shaved." I still have the numbness of the pinkie and left ring finger. That will take time to be recovered.

Good Luck!

Yiayia
Dallas, TX
 
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