Hi all! I am glad I found this site, it is so good to know I can come here and folks will understand what is going on with me. When I mention CuTS to others, like family, friends, etc., they look at me like I just flew in from outer space. I have always had a fear of telling my doctors everything, as in where I hurt and such, for fear of being shot down as a complainer. And I have tolerated the pain fairly well over the years. But now I am 40, and I know if I want to be able to use my hands, that I am going to have to become more assertive. Not aggressive, at least not yet.

I just saw a new neuro today, referred by my MD after some dizziness and headaches last week. When I spoke of the pain in my arms, she checked a few things and scheduled me for a EMG in a couple of weeks. I couldn't even tell her I had been already diagnosed a few years ago. I feel like that if I go into her office with all these areas of difficulty, that she won't believe a bit of my symptoms because there are so many. Make sense? I certainly don't want to come off sounding like I am telling her how to treat me. And the sad thing is that I know she needs to hear these things, she can't read my mind. I see her again in two weeks. I really like her, hope she and I can get to work on treating this. My arms, especially my right, hurt so much it wakes me up in the night with such pain that I cry.